By Danijela Szili. The two-day conference (6-7 February) was organized in Budapest by the Hungarian Rett Syndrome Foundation, Hungarian Angelman Syndrome Foundation and Kapcsol-At Kft. who are the official Tobii distributers in Hungary. It was a huge event with almost 300 participants. Most of them were therapists from all over the country working with nonverbal […]
8th World Congress on Rett Syndrome – Registration continues!
By Olga Timutsa Dear Friends, please note that the registration for the World Congress on Rett syndrome to be held on 13-17 May 2016 in Russia, Kazan continues. All the necessary information can be found at worldcongress2016.rettsyndrome.ru Kazan is a beautiful and hospitable city with 1000 years of history. Many cultures, religions, traditions meet here in […]
Charity concert “For Silent Angels” in Poland
On 22nd of December Polish Rett Syndrome Association in cooperation with Kraków City Council organized a special charity concert “For Silent Angels” in Kraków, in ICE Kraków Congress Center. It were wonderful two hours full of the best music – classical, rock and folk. For our Silent Angels played Sinfonietta Cracovia, Grzegorz Majzel and folk […]
8th World Congress on Rett Syndrome – Early bird registration ends January 17th
http://worldcongress2016.rettsyndrome.ru/en/registration/terms.php
4th European Congress on Rett Syndrome – Full report
The 4th European Congress on Rett syndrome took place in Rome during the last weekend of October. More than 400 participants were present. The congress was divided between poster sessions and two parallel sessions; one dedicated to researchers and clinicians talks, while the other was moderated by therapists, educators and teachers. In the therapists’ session, […]
Rett UK celebrating their 30th Anniversary
From left to right – Rachael Stevenson (Reverse Rett), Mark Bailey, Becky Jenner and Stuart Cobb By Becky Jenner. Rett UK were delighted to celebrate their 30th Anniversary with a Family Weekend at the Hilton Hotel in Northampton. Attended by over 200 families and professionals representing key disciplines across health, therapeutic interventions and research the weekend had […]
4th European Congress on Rett Syndrome: final program
Dear friends, the final program of the upcoming European Congress on Rett Syndrome can be visualized at a glance on the congress website. A full printable brochure can also be downloaded here. See you in Rome!
RTT50.1: Celebrating the 50th anniversary of the first publication on Rett Syndrome by Andreas Rett
Share your Stories #WWYG
It is not too late! Let’s make October awareness month a success! Tell the world WHY WOULD YOU GIVE to Rett syndrome charities/associations. If you wish that people support your organisation, ask them to share what would motivate them to give, whether it’s running a marathon, signing a check, organising an event or taking part in a clinical trial. If you […]
Please help maintaining the Rett Syndrome Database Network
Dear friends, As President of Rett Syndrome Europe, I am writing to you today to ask for your Association’s support for the European Rett database located in Italy: the Rett Syndrome Database Network (RSDN). The simple fact is that vital research on Rett syndrome or clinical trials cannot be easily achieved without collecting and analysing […]