We are happy to share the news from Rett Expertise Centre Netherlands-GKC and Rettsyndrome.org about the release of the NEW Rett Syndrome Communication Guidelines: A handbook for therapists, educators and families. The digital download is free and can be downloaded as many times as you need.You can choose to download the complete handbook or individual […]
Professor Huda Zoghbi and Professor Sir Adrian Bird have been awarded The Brain Prize 2020
We are excited to announce that Professor Huda Zoghbi and Professor Sir Adrian Bird have been awarded The Brain Prize 2020, worth 10 million Danish kroner. The Brain Prize 2020 was awarded for their fundamental and pioneering work on Rett syndrome which established the importance of epigenetic regulation in both brain development and the maintenance […]
Overview interesting Resources in Covid times
Rett Syndrome Europe is happy to give you an overview of the interesting resources which are available and organized by different associations in different languages in these period of lockdown ALL LANGUAGES Free games in all languages: Gazeplay is a free and open-source software which gathers several mini-games playable with an eye-tracker : https://github.com/GazePlay/GazePlay ENGLISH […]
World Rett Syndrome Congress Rescheduled
Due to the current pandemia of COVID-19 that the world is fighting over the past months, Australian Rett Syndrome Association had to take a difficult decision and postpone the World Congress that was scheduled later this year. We share their message and hope to see each other again in 2021. Dearest Rett Families and Friends, […]
Project of a lifetime – “Mutual Support: Expanding Borders”
In 2019, the project “Mutual Support: Expanding Borders” was held for the Rett syndrome communities from Russia, Armenia, Kazakhstan and Moldova. Belarus also joined the project. There were organized trips for the experts and parent teams to these countries, as well as round tables, workshops, master classes, lectures, and parent sessions within the framework of […]
Update on the WORLD RETT SYNDROME CONGRESS to be held in Surfers Paradise from 30 September to 3 October 2020
Bill Callaghan, Vice-President of Rett Syndrome Association of Australia Inc. (RSAA) reached out to us to share the updates on the upcoming great event – World Rett Syndrome Congress. Please read his message bellow and check out the first information about the speakers of the congress in the file attached. The first World Rett Syndrome […]
6th European Rett Syndrome Conference, Tampere Finland
The 6th European Rett Syndrome Conference took place in Tampere, Finland on September 27th and 28th. The Finish Rett Syndrome Association did an excellent job and was incredibly hospitable to around 180 participants from 18 countries worldwide. Over the course of these two days, participants were invited to join parallel sessions. Many excellent speakers well-known […]
Newly founded Croatian Rett Syndrome Foundation – Silent Angels and their first big event in Rijeka
From October 17th to 19th Neurology forum for neurodegenerative diseases was held at the University Campus in Rijeka, organized by Dr. Vuletić, the head of the Neurology clinic based in this beautiful city on the Adriatic coast. Despite the fact that Rett syndrome is not a neurodegenerative disorder Dr. Vuletić invited Prof. Curfs and Smeets […]
Austrian Rett Syndrome Association Family Information Day
On October 5th, 11 Rett families and eight carers met for information exchange in the Seminarhof Kletzmayr St. Marien, Austria. After the welcome and presentation of the daily program Stella and Gerhard Peckary reported on their participation in the 6th European Rett Syndrome Congress in Tampere (Finland). News from interesting studies on epilepsy, behavioural problems, […]
Both Artistic and Therapeutic Rett Summer Camps in Hungary organized by Hungarian Rett syndrome Foundation
Since its foundation in 1995, the Hungarian Rett Syndrome Foundation has been organizing therapeutic summer camps for children and adolescents with Rett Syndrome. The girls are all with multiple special needs and in need of full care, so organizing the camp involves a lot of coordination and preparation. In Hungary, it is very difficult to […]