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Stories, statements and updates from Rett Syndrome Europe and our member associations across Europe.

  • Summer Camp for Rett Girls in Hungary

    Summer Camp for Rett Girls in Hungary

    By Danijela Szili. This event took place during the first week of July in a little town called Agard on the Velencei Lake near Budapest. The Hungarian Rett Syndrome Foundation made this special holiday for Rett girls possible. We rented a house near the beach on the lake. The house was well equipped, with enough…

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  • RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans

    RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans

    RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans. Rett Syndrome Europe was present at the 7th World Rett Syndrome Congress hosted by IRSF, International Rett Syndrome Foundation, in New Orleans. RSE was represented by Martine Gaudy, RSE Secretary and Thomas Bertrand,…

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  • For Clinicians and Scientists : Rett Syndrome Networked Database

    For Clinicians and Scientists : Rett Syndrome Networked Database

    Rett Syndrome Networked Database is a tool of great value to both the scientific and the clinical RTT community More : www.rettdatabasenetwork.org and download PDF

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  • The 2012 World Rett Syndrome Congress

    The 2012 World Rett Syndrome Congress

    The 2012 World Rett Syndrome Congress, hosted for the first time in the United States, is a prestigious global meeting, attended by the world’s leading researchers, clinicians and educators in the field of Rett syndrome. It will consist of 4 distinct, yet interconnected meetings June 22-26, 2012. This dynamic program will help chart the course…

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