Family resources

Rett Resource

Plain-language articles on every aspect of life with Rett syndrome — written by clinicians and therapists, translated into 11 languages.

About the resource

Care and information that families can read in their own language.

Rett Resource is a library of articles covering the everyday questions that come up after a Rett syndrome diagnosis — communication, education, mobility, mealtime, sleep, breathing, scoliosis, puberty, mental health and more.

Each article is prepared by clinicians, therapists and researchers from across Europe and the world, and reviewed before publication. Translations are coordinated by Rett Syndrome Europe together with our member associations, so families can read the same trusted information in their own language. Some translations are still in progress — the article counts below show what is available today.

Choose your language