Family resources
Books about Rett syndrome
A reading list spanning three decades — handbooks for families, doctoral research, clinical references and practical guides for everyone supporting people with Rett syndrome.
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About this list
19 books, in plain language families can read.
Most published research on Rett syndrome lives behind paywalls and uses scientific language that is hard to follow. The books on this list are different — written for families, therapists, educators and clinicians, with explanations you can actually use. We’ve collected ISBNs and links wherever a copy is freely available online.
Know a book that should be here? Write to info@rettsyndrome.eu.
2020
Rett Syndrome Communication Guidelines: A handbook for therapists, educators and families
Neurological Disorders and Imaging Physics: Applications in Dyslexia, Epilepsy and Parkinson’s (Volume 5)
Chapter 6 is dedicated to Rett syndrome.
2019
The Silent Angels: Rett Syndrome — The Genetic Case of the Autism Spectrum Disorder
Understanding Rett Syndrome: A guide to symptoms, management and treatment
2018
Music Interventions for Neurodevelopmental Disorders
Health-enhancing participation in girls and women with Rett syndrome — A balancing act
Doctoral dissertation, Lund University.
2017
Rett Syndrome
2015
Rett Syndrome and Other Communication Disorders: Symptoms, Treatment and Prognosis
2014
Augenblicke: Unterstützte Kommunikation und RETT-Syndrom
2011
Rett Syndrome: Therapeutic Interventions
2007
The Rett Syndrome Handbook
Rett Syndrome – A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers
2006
Understanding Rett Syndrome. A Practical Guide for Parents, Teachers, Therapists and Psychologists
2005
Epilepsie von A – Z — Medizinische Fachwörter verstehen
2003
Rett Syndrome – A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
2001
Rett Disorder and the Developing Brain
1998
Pathways to Learning in Rett Syndrome
1993
Rett Syndrome — Clinical and Biological Aspects: Studies on 130 Swedish Females
1991
Rett-Syndrom. Eine Übersicht über psychologische und pädagogische Erfahrungen
Translated from the original Swedish edition (1988): “Retts Syndrom — en kartläggning av psykologiska och pedagogiska erfarenheter i Sverige”.