Dear Friends,
We are proud to present our new flyer. Use it at you convenience.
There is a light version for internet sharing or a large (report) version for professional printing.
Spread Awareness!
Dear Friends, We are proud to present our new flyer. Use it at you convenience. There is a light version for internet sharing or a large (report) version for professional printing. Spread Awareness!
Dear Friends,
We are proud to present our new flyer. Use it at you convenience.
There is a light version for internet sharing or a large (report) version for professional printing.
Spread Awareness!

Neurogene has announced the successful completion of enrollment in the EMBOLDEN trial of NGN-401, an investigational gene therapy for Rett syndrome. The…

rettX is the pan-European, patient-led Rett syndrome registry led by Rett Syndrome Europe, presented at ECRD 2026. Learn what it is and…

A multi-country caregiver study presented by Rett Syndrome Europe at ECRD 2026 reveals consistent unmet needs and fragmented care across Europe.