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Stories, statements and updates from Rett Syndrome Europe and our member associations across Europe.

  • First Newsletter from MECP2 Duplication Syndrome Community – in English, German and French

    First Newsletter from MECP2 Duplication Syndrome Community – in English, German and French

    Congratulations to David and colleagues for getting their first newsletter out in German, English and French! We look forward to hearing more about your work and will support your endeavours as much as we can!

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  • CGPMax supplement

    CGPMax supplement

    We have been made aware of this product, a natural supplement to support brain health, by a parent of a girl with Rett syndrome in Spain whose daughter has been taking it. The product has been developed for the aged population and not specifically to help with Rett syndrome. It has not been subject to…

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