At RSE we know how important is quality literature about Rett Syndrome. Whilst there are numerous articles published on Rett Syndrome, they are written in scientific language which is difficult to understand for families. Thus, we compiled a list of books published on RS as their language is usually much more reader friendly. This list of literature will give you extensive knowledge about RS as well as a closer look on how this knowledge developed over the course of time.
We added the links to the books that a freely available online and ISBN numbers for an easier search should you want to buy one or find it in a library. Please let us know if we missed any significant peace of literature on RS by contacting as at info@rettsyndrome.eu
2020
Rett Syndrome Communication Guidelines: A handbook for therapists, educators and families
Gillian S. Townend, Theresa E. Bartolotta, Anna Urbanowicz, Helena Wandin, Leopold M.G. Curfs
ISBN: 978-94-6380-822-4 (electronic)
Neurological Disorders and Imaging Physics: Applications in Dyslexia, Epilepsy and Parkinson’s (Volume 5)
Ayman El-baz, Jasjit S. Suri, Medina Bandic, Jasmin Kevric
Hardback ISBN: 9780750327213
Ebook ISBN: 9780750327237
Chapter 6 is dedicated to Rett Syndrome
2019
The Silent Angels: RETT SYNDROME: THE GENETIC CASE OF THE AUTISM SPECTRUM DISORDER
Lourdes M. Rodriguez, Dr. Alan K. Percy, Dr. Gilmer J. Rodriguez
ISBN-10 1705566219
ISBN-13: 978-1705566213
Understanding Rett Syndrome: A guide to symptoms, management and treatment
Rosa Angelo Fabio, Tindara Capri, Gabriella Martino
ISBN-10: 1138600555
ISBN-13: 978-1138600553
2018
Music Interventions for Neurodevelopmental Disorders
Alessandro Antonietti, Barbara Colombo, Braelyn R DeRocher
ISBN: 9783319971506
Health-enhancing participation in girls and women with Rett syndrome – A balancing act
Michelle Stahlhut
Doctoral Dissertation
ISBN 978-91-7619-646-5
ISSN 1652-8220
2017
Rett Syndrome
Walter E. Kaufmann, Alan K. Percy, Angus Clarke, Helen Leonard, SakkuBai Naidu
ISBN-10 : 190996283X
ISBN-13 : 978-1909962835
2015
Rett Syndrome and Other Communication Disorders: Symptoms, Treatment and Prognosis
Daniel L. Kolby
ISBN-13: 978-1634639200
ISBN-10: 1634639200
2014
Augenblicke: Unterstützte Kommunikation und RETT-Syndrom
Loeper Angelika Von
ISBN-10 : 9783860592427
ISBN-13 : 978-3860592427
ASIN : 3860592424
2011
Rett Syndrome: Therapeutic Interventions
Meir Lotan, Joav Merrick
ISBN-10: 1617280801
ISBN-13: 978-1617280801
2007
The Rett-Syndrome Handbook
Kathy Hunter
ISBN: 0-9770644-0-9
ISBN13: 978-0-9770644-0-3
Rett Syndrome – A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers
Philip M. Parker
ISNB-10: 0497112876
ISBN-13: 978-0497112875
2006
Understanding Rett Syndrome. A Practical Guide for Parents, Teachers, Therapists and Psychologists
Barbro Lindberg
ISBN-13: 978-0889373068
ISBN-10: 088937306X
2005
Epilepsie von A – Z – Medizinische Fachwörter verstehen
Dr. med. Günter Krämer
ISBN-10 : 3830432291
ISBN-13 : 978-3830432296
2003
Rett Syndrome – A Medical Dictionary, Bibliography, and Annoted Research Guide to Internet References
ICON Health Publications
ISBN-10: 0597836663
ISBN-13: 978-0597836664
2001
Rett Disorder and the Developing Brain
Alison Kerr, Ingegerd Witt Engerstrom
ISBN-10 : 0198568150
ISBN-13 : 978-0198568155
1998
Pathways to Learning in Rett Syndrome
Debbie Wilson
ISBN-13: 978-1853465338
ISBN-10: 185346533X
1993
Rett Syndrome – Clinical and Biological Aspects: Studies on 130 Swedish Females
Bengt Hagberg, Maria Anvret, Jan Wahlstrom, Jan Wahlström
ISSN: 0069-4835
ISBN: 0 521 41283 8
1991
Rett-Syndrom. Eine Übersicht über psychologische und pädagogische Erfahrungen
Barbro Lindberg
ISBN 3-85114-827-5
Title of the original Swedish edition 1988 “Retts Syndrom – en kartläggning av psykologiska och pedagogiska erfarenheter i Sverige”